# Participant ID key for NACC and ACT donor IDs

**URL:** <https://community.brain-map.org/t/participant-id-key-for-nacc-and-act-donor-ids/4627>\
**Category:** Technical\
**Created:** [August 7, 2025, 3:37am UTC](https://community.brain-map.org/t/participant-id-key-for-nacc-and-act-donor-ids/4627 "2025-08-07T03:37:19Z")\
**Posts on this page:** 4\
**Page:** 1

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**Author:** ![LJT](https://avatars.discourse-cdn.com/v4/letter/l/48db29/32.png) [@LJT](https://community.brain-map.org/u/LJT)\
**Post date:** [August 7, 2025, 3:37am UTC](https://community.brain-map.org/t/participant-id-key-for-nacc-and-act-donor-ids/4627/1 "2025-08-07T03:37:19Z")

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Hello!

I recently requested access from the NACC to their participant list so that we could acquire a list of medications used by participants (to examine any sex- and ApoE genotype-dependent effects) and match them to the ACT (Adult Changes in Thought) dataset we acquired from the SEA-AD consortium’s website, however the donor IDs from ACT and the NACC IDs do not match and we were hoping that someone can provide a key. ACT donor IDs are written as HXX.XX.XXX (H19.33.004 for example) and NACC provided IDs that looks like this NACC023730. We reached out to NACC originally due to a document on the SEA-AD website stating that in the ACT study “Subjects recruited into the ADRC are evaluated annually and a standardized clinical dataset, the Uniform Data Set (UDS), defined by NACC/ADRCs is collected.”

Thank you for your help in sorting this out!

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**Author:** ![jeremyinseattle](https://yyz1.discourse-cdn.com/flex027/user_avatar/community.brain-map.org/jeremyinseattle/32/50_2.png) [@jeremyinseattle](https://community.brain-map.org/u/jeremyinseattle)\
**Post date:** [August 7, 2025, 3:08pm UTC](https://community.brain-map.org/t/participant-id-key-for-nacc-and-act-donor-ids/4627/2 "2025-08-07T15:08:57Z")

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Hi @LJT , Unfortunately, this translation table is not something we are allowed to provide publicly due to privacy restrictions. I’ll reach out to you separately about your specific situation.

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**Author:** ![aiim-lab](https://yyz1.discourse-cdn.com/flex027/user_avatar/community.brain-map.org/aiim-lab/32/2353_2.png) [@aiim-lab](https://community.brain-map.org/u/aiim-lab)\
**Post date:** [September 3, 2025, 8:00pm UTC](https://community.brain-map.org/t/participant-id-key-for-nacc-and-act-donor-ids/4627/3 "2025-09-03T20:00:22Z")

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Hi @jeremyinseattle . Following up on this request which was shared to @eitan.kaplan and @jeremyinseattle couple of weeks ago.

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**Author:** ![jeremyinseattle](https://yyz1.discourse-cdn.com/flex027/user_avatar/community.brain-map.org/jeremyinseattle/32/50_2.png) [@jeremyinseattle](https://community.brain-map.org/u/jeremyinseattle)\
**Post date:** [September 4, 2025, 3:06pm UTC](https://community.brain-map.org/t/participant-id-key-for-nacc-and-act-donor-ids/4627/4 "2025-09-04T15:06:38Z")

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Sorry for the delay. I believe we have now resolved this via e-mail.
