Participant ID key for NACC and ACT donor IDs

Technical
1

Hello!

I recently requested access from the NACC to their participant list so that we could acquire a list of medications used by participants (to examine any sex- and ApoE genotype-dependent effects) and match them to the ACT (Adult Changes in Thought) dataset we acquired from the SEA-AD consortium’s website, however the donor IDs from ACT and the NACC IDs do not match and we were hoping that someone can provide a key. ACT donor IDs are written as HXX.XX.XXX (H19.33.004 for example) and NACC provided IDs that looks like this NACC023730. We reached out to NACC originally due to a document on the SEA-AD website stating that in the ACT study “Subjects recruited into the ADRC are evaluated annually and a standardized clinical dataset, the Uniform Data Set (UDS), defined by NACC/ADRCs is collected.”

Thank you for your help in sorting this out!

2

Hi @LJT , Unfortunately, this translation table is not something we are allowed to provide publicly due to privacy restrictions. I’ll reach out to you separately about your specific situation.

1 Like
3

Hi @jeremyinseattle . Following up on this request which was shared to @eitan.kaplan and @jeremyinseattle couple of weeks ago.

4

Sorry for the delay. I believe we have now resolved this via e-mail.